This is a list of National level Resources. The appearance of these organizations does not indicate an endorsement of them by the Airman & Family Readiness Center or the U.S. Air Force.
Advocacy
Autism Spectrum Disorders
Developmental Disabilities
Education
General Disabilities
Hearing and Speech
Hospital/Hospice Care
Learning Disorders
Mental Health
Self-Advocacy/Self-Determinations
Specific Disabilities
Traumatic Brain Injury
Vision
Let us know about a resource or group that could benefit other military families with their exceptional family member. Email us at efmp@ellsworthafrc.org.
• American Association of People with Disabilities (AAPD) – http://aapd-dc.org
• The ARC – http://www.thearc.org
• Disabilities Rights Education & Defense Fund – http://www.dredf.org
• National Disabilities Rights Network – Protection & Advocacy for Individuals with Disabilities – http://www.napas.org
• Autism Information Center – Center for Disease and Prevention – http://www.cdc.gov/ncbddd/autism/index.htm
• Autism Online – http://www.autismonline.org
• Autism Society of America – http://www.autism-society.org
• Autism Spectrum DIsorders – National Institutes of Health – http://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-pervasive-developmental-disorders/index.shtml
• Doug Flutie, Jr. Foundation – http://www.dougflutiejrfoundation.org
• MAAP Services for Autism and Asperger Spectrum Disorders -
http://www.maapservices.org
• Administration on Developmental Disabilities- U.S. Department of Health & Human Services – http://www.acf.hhs.gov/programs/add
• American Association of Intellectual & Developmental Disabilities (AAIDD) – http://www.aaidd.org
• Association of University Centers on Disabilities – http://www.aucd.org
• National Association of Councils on Developmental Disabilities (NACDD) – http://www.nacdd.org
• National Center on Birth Defects & Developmental Disabilities (NCBDDD) Centers for Disease Control & Prevention – http://www.cdc.gov/ncbddd
• Office of Special Education & Rehabilitative Services (OSERS)http://www.ed.gov/about/offices/list/osers/index.html
• Office of Special Education Programs (OSEP)http://www.ed.gov/about/offices/list/osers/osep/index.html
General Disabilities Information
• Children’s Disability Information – http://www.childrensdisabilities.info
• Disability Information – http://www.disabilityinfo.gov
• Easter Seals Disability Information – http://www.easterseals.com
• Job Accommodation Network (JAN)http://www.jan.wvu.edu
• March of Dimes – http://www.marchofdimes.com
• National Center on Physical Activity and Disability (NCPAD) – http://www.ncpad.org
• National Council on Disability (NCD) – http://www.ncd.gov
• National Dissemination Center for Children with Disabilities (NICHCY) – http://www.nichcy.org
• National Organization on Disability (NOD) – http://www.nod.org
• National Organization for Rare Disorders (NORD) – http://www.raredisorders.org
• President’s Committee for People with Intellectual Disabilities – http://www.acf.hhs.gov/programs/pcpid
• Very Special Arts (VSA arts) – http://www.vsarts.org
• American Society for Deaf Children (ASDC) – http://www.deafchildren.org
• American Speech-Language-Hearing Association (ASHA) – http://www.asha.org
• Better Hearing Institute – http://www.betterhearing.org
• House Ear Institute – http://www.hei.org
• National Center for Stuttering – http://www.stuttering.com
• National Institute on Deafness & Other Communication Disorders National Institutes of Health – http://www.nidcd.nih.gov
• National Spasmodic Dysphonia Association – http://www.dysphonia.org
• The Stuttering Foundation – http://www.stuttersfa.org
• Children’s Hospice International – http://www.chionline.org
• Hospice Education Institute – http://www.hospiceworld.org
• Shriners Hospitals for Children – http://www.shrinershq.org/Hospital/Main
• Learning Disabilities Association of America – http://www.ldaamerica.org
• LD Online – http://www.ldonline.org
• National Center for Learning Disabilitieshttp://www.ncld.org
• Mental Health America – http://www.mentalhealthamerica.net
• National Alliance for the Mentally Ill (NAMI) – http://www.nami.org
• National Institute of Mental Health – National Institutes of Health – http://www.nimh.nih.gov
• National Mental Health Consumer’s Self-Help Clearinghouse – http://www.mhselfhelp.org
Self-Advocacy/Self Determination
• Advocating Change Together (ACT) – http://www.selfadvocacy.org
• Center for Self-Determination – http://www.self-determination.com
• Self Advocates Becoming Empowered (SABE USA) – http://www.sabeusa.org
• Self-Advocate Leadership Network – http://www2.hsri.org/leaders/about.htm
• American Leprosy Missions (Hansen’s Disease) – http://www.leprosy.org
• Amyotrophic Lateral Sclerosis Association (ALS, Lou Gehrig’s Disease) – http://www.alsa.org
• Batten Disease Support & Research Association (BDSRA) – http://www.bdsra.org
• Charcot-Marie_Tooth Association (CMTA) – http://www.cmtausa.org
• Children’s Tumor Foundation (Neurofibromatosis) – http://www.ctf.org
• Cleft Palate Foundation – http://www.cleftline.org
• Cornelia de Lange Syndrome USA Foundation – http://www.cdlsusa.org
• Crohn’s and Colitis Foundation of America (CCFA) – http://www.ccfa.org
• Cystic Fibrosis Foundation – http://www.cff.org
• Epilepsy Foundation – http://www.epilepsyfoundation.org
• Histiocytosis Association of America – http://www.histio.org
• Huntington’s Disease Society of America – http://www.hdsa.org
• Lupus Foundation of America – http://www.lupus.org
• Myasthenia Gravis Foundation of America – http://www.myasthenia.org
• Moebius Syndrome Foundation – http://www.moebiussyndrome.com
• National Down Syndrome Congress – http://www.ndsccenter.org
• National Down Syndrome Society – http://www.ndss.org
• National Fragile X Foundation – http://www.nfxf.org
• National Lymphedema Network – http://www.lymphnet.org
• National Multiple Sclerosis Society – http://www.nationalmssociety.org
• National Niemann-Pick Disease Foundation – http://www.nnpdf.org
• National Organization for Rare Disorders – http://www.rarediseases.org
• National Reye’s Syndrome Foundation – http://www.reyessyndrome.org
• Neurofibromatosis, Inc. – http://www.nfinc.org
• Office of Orphan Products Development (OOPD) – http://www.fda.gov/orphan
• Pierre Robin Network – http://www.pierrerobin.org
• Prader-Willi Syndrome Association (USA) – http://www.pwsausa.org
• Scleroderma Foundation – http://www.scleroderma.org
• Sickle Cell Disease Association of America (SCDAA) – http://www.sicklecelldisease.org
• Spina Bifida Association of America – http://www.sbaa.org
• Spondylitis Association of America (SAA) – http://www.spondylitis.org
• Spondylitis Web Info For Teens (SWIFT) – http://teens.spondylitis.org
• Sturge-Weber Foundation – http://www.sturge-weber.org
• Tourette Syndrome Association – http://www.tsa-usa.org
• Tuberous Sclerosis Alliance – http://www.tsalliance.org
• Turner Syndrome Society of the United States – http://www.turnersyndrome.org
• United Cerebral Palsy – http://www.ucp.org
• Brain Injury Association of America – http://www.biausa.org
• Brain Trauma Foundation – http://www.braintrauma.org
• National Institute of Neurological Disorders & Stroke (National Institute of Health) – http://www.ninds.nih.gov/disorders/tbi/tbi.htm
• American Council of the Blind – http://www.acb.org
• Foundation Fighting Blindness – http://www.blindness.org
• Lighthouse International – http://www.lighthouse.org
• National Association for Parents of Children with Visual Impairments (NAPVI) – http://www.spedex.com/napvi
• National Federation of the Blind – http://www.nfb.org
